Archive for August, 2013


August 5, 2013 by Marilyn Martone | Edit

The music from the local fire house’s annual outdoor party blasts from five blocks away. I imagine what it would be like to be there – talking, having a drink, and maybe even dancing. But I’m a caregiver and my daughter’s aide is on vacation this week. Besides I’d probably find it hard to go without my daughter because everyone else seems to have forgotten that she exists and I am her connection to the larger world.

Besides there’s too much to do. My husband is having surgery on his back this week and I need to take him to do his pre-op work on Tuesday and then spend all day Thursday with him at the hospital. I also need to take my daughter into the city on Wednesday to see her neurologist.

In a few hours my two young granddaughters are coming for dinner so my son, who is now raising the children by himself, can have some free time.

My husband also wants to know why I don’t spend more time with him and my friends are telling me that I need to take care of myself.

Just as I’m wondering who I should take care of first, my daughter gets a large gash in her knee as she is transferring into her wheel chair. Blood is gushing out all over. I rush her to the car and as I brace her legs for the transfer my white slacks get covered in blood.

Nine stitches and three hours later I return home. I’ve disappointed my granddaughters, my son, and my husband again. I clean up the blood, turn my daughter over to the evening aide who is not on vacation, listen to the music from the firehouse, and wonder if loving is always so fragmented and at times so lonely.

Posted in brain injury, caregiving, disability | Tagged Brain Injury, caregiving, disability, TBI | Leave a Comment

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